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Query: UMLS:C0026850 (muscular dystrophy)
 5,870 document(s) hit in 31,850,051 MEDLINE articles (0.00 seconds)

The purpose of this study was to investigate the relationship in the parents among social support, psychological stress response, and acceptance of the fact that their children had progressive muscular dystrophy. Parents of progressive muscular dystrophy patients, 326 in total, completed a questionnaire that included scales of social support, acceptance of muscular dystrophy, positive thought on child's muscular dystrophy, and psychological stress response. Results of analysis of variance (ANOVA) indicated that features of the social support received by the parents differed at different stages of the disease, but levels of acceptance of the disease and psychological stress response were not different. Results of analysis of covariance structure suggested that social support increased parent's positive cognition about the disease, the cognition in turn increased their acceptance of the disease, and the acceptance reduced psychological stress responses. Finally, social support systems that were available to the parents of children with muscular dystrophy were discussed.
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PMID:[Social support and acceptance of the disease by parents of children who have progressive muscular dystrophy]. 1596 85

The life expectancy of patients with muscular dystrophy has increased in recent while their challenges of activity of daily living persist. Therefore, psychological support is crucial for patients with muscular dystrophy and their family members and caregivers. We have carried out several studies to explore appropriate psychological support for these patients. Individual counseling was effective to support the mental health of patients with muscular dystrophy; however counseling settings should be changed adapted to the physical conditions of patients. A short-term support group for family members was helpful for sharing information and concerns about child rearing. A case conference including physicians, nurses, caseworkers and clinical psychologists was held concerning a decreased patient. Combined case conferences with medical staff reduce psychological stress for staff and prevent from burnout syndrome. Research on how to explain the illness to boys with muscular dystrophy started in 2009. Interviews with adult patients revealed that they had wanted to know about their illness while they were young children. Half of their parents had hoped that their children would recognize the diagnosis by seeing friends with muscular dystrophy during hospitalization. Some of the parents explained the diagnosis to their children directly during childhood, hoping to battle the illness together. In 2010, we studied the attitudes of pediatric neurologists toward explaining the muscular dystrophy diagnosis to children. Seventy percent of respondents answered that patients should be told about their illness. Many of them desired the opportunity to be trained in appropriate ways to tell children about the diagnosis.
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PMID:[Psychological support for patients with muscular dystrophy]. 2206 77

Muscular dystrophy is a progressive disease of muscle weakness, muscle atrophy and cardiac dysfunction. Patients afflicted with muscular dystrophy exhibit autonomic dysfunction along with cognitive impairment, severe depression, sadness, and anxiety. Although the psychological aspects of cardiovascular disorders and stress disorders are well known, the physiological mechanism underlying this relationship is not well understood, particularly in muscular dystrophy. Therefore, the goal of this perspective is to highlight the importance of autonomic dysfunction and psychological stress disorders in the pathogenesis of muscular dystrophy. This article will for the first time-(i) outline autonomic mechanisms that are common to both psychological stress and cardiovascular disorders in muscular dystrophy; (ii) propose therapies that would improve behavioral and autonomic functions in muscular dystrophy.
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PMID:The link between stress disorders and autonomic dysfunction in muscular dystrophy. 2452 98