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 32,579 document(s) hit in 31,850,051 MEDLINE articles (0.00 seconds)

This paper reports a study carried out in four primary care NHS trusts (PCTs) in the Midlands in order to inform inter-agency training and service planning around autism spectrum disorder (ASD). The aim of the study was to identify generic health visitors' perceptions of their role with families where children may have an ASD. The qualitative methodology is explained and key findings presented. Eleven health visitors participated as volunteers in one-to-one semi-structured interviews that were tape-recorded. Analysis of the data found some perceived tensions between health visitors' public health role and their work with individual families, especially when children had possible disabilities. Health visitors identified a role in the early identification of children developing atypically and in family support. Health visitors' perceptions are described and implications discussed. Recommendations are made regarding developmental assessment, training and service planning.
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PMID:Health visitors' perceptions of their role in autism spectrum disorder. 1745 71

Good science demands independent replication of new ideas and results and abandonment of accepted theories in light of more reliable evidence. Failure to comply leads to damaging bad science, as with the falsely claimed association between measles, mumps and rubella vaccination and autism. Progress of good science also often requires serendipity, 'making discoveries by accident and sagacity of things not sought'. Work on the pentraxin proteins, C-reactive protein (CRP) and serum amyloid P component (SAP), and on amyloidosis, has benefited from abundant serendipity, leading to routine clinical use of CRP measurements, the invention of SAP scintigraphy for amyloidosis, the establishment of the NHS National Amyloidosis Centre providing superior patient care, and latterly the invention of a novel pharmacological mechanism for therapeutic depletion of pathogenic proteins. New drugs using this mechanism are in development for amyloidosis and cardiovascular disease and potentially also Alzheimer's disease, type II diabetes and other tissue damaging conditions.
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PMID:Science and serendipity. 1819 4

Staffat a south east London NHS trust are discovering how dance can improve their communication with patients with learning disabilities. Weekly dance sessions, run by Magpie Dance, are now also being made available to people with dementia, autism and other conditions. Through dance people can express emotion, build confidence and change their lives.
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PMID:Step change. 2278 66

This article discusses the meaning and philosophical basis of disability discrimination in health care. It focuses on aspects of language that influence discourse about disability and affect the experiences of people with disabilities. Reference is made to the experiences of those who have an autism spectrum condition, with a specific focus on three NHS employees with Asperger syndrome, in relation to disability discrimination. The implications for nurses and nursing are discussed. Recommendations are made for awareness raising and training.
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PMID:Disability discrimination in healthcare services and employment. 2641 69

This study reports on the perspective of all the specialist nurses in community paediatric teams in one NHS trust on their role in pre-school autism assessment. Kim's critical reflective inquiry research method ( Kim, 1999 ) was adapted through the inclusion of the researcher as a participant. Participants reflected on the nursing beliefs and values they hold in common, and on their actions in practice. The study found that the beliefs and values held by these nurses, and their intention to offer holistic nursing delivered through a professional relationship of care, correlated with the kind of care that parents have said families need, and make a unique contribution to team assessment.
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PMID:What do nurses think they are doing in pre-school autism assessment? 2701 69

Staff at a south east London NHS trust are discovering how dance can improve their communication with patients with learning disabilities. Weekly dance sessions, run by Magpie Dance, are now also being made available to people with dementia, autism and other conditions. Through dance people can express emotion, build confidence and change their lives.
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PMID:Step change Ian McMillan Step change is a Freelance journalist. 2807 21

NHS England recently published a national plan to develop community services for people with intellectual disabilities and autism who display challenging behaviour by using resources from the closure of a large number of hospital beds. An ambitious timescale has been set to implement this plan. The bed closure programme is moving ahead rapidly, but there has been little progress in developing community services to support it. This paper discusses the impact of the gap between policy and practice on the care and safety of patients with intellectual disabilities and forensic needs who form a distinct subgroup of the target population and are being disproportionately affected by this government policy.
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PMID:The impact of transforming care on the care and safety of patients with intellectual disabilities and forensic needs. 2881 14

Citizen science approaches are of great interest for their potential to efficiently and sustainably monitor wildlife populations on both public and private lands. Here we present two studies that worked with volunteers to set camera traps for ecological surveys. The photographs recorded by these citizen scientists were archived and verified using the eMammal software platform, providing a professional grade, vouchered database of biodiversity records. Motivated by managers' concern with perceived high bear activity, our first example enlisted the help of homeowners in a short-term study to compare black bear activity inside a National Historic Site with surrounding private land. We found similar levels of bear activity inside and outside the NHS, and regional comparisons suggest the bear population is typical. Participants benefited from knowing their local bear population was normal and managers refocused bear management given this new information. Our second example is a continuous survey of wildlife using the grounds of a nature education center that actively manages habitat to maintain a grassland prairie. Center staff incorporated the camera traps into educational programs, involving visitors with camera setup and picture review. Over two years and 5,968 camera-nights this survey has collected 41,393 detections of 14 wildlife species. Detection rates and occupancy were higher in open habitats compared to forest, suggesting that the maintenance of prairie habitat is beneficial to some species. Over 500 volunteers of all ages participated in this project over two years. Some of the greatest benefits have been to high school students, exemplified by a student with autism who increased his communication and comfort level with others through field work with the cameras. These examples show how, with the right tools, training and survey design protocols, citizen science can be used to answer a variety of applied management questions while connecting participants with their secretive mammal neighbors.
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PMID:The value of citizen science for ecological monitoring of mammals. 2961 Jul 6

Patients should be at the heart of everything we do. The aim should always be to achieve healthcare outcomes by involving patients fully in their own care, with decisions made in partnership with clinicians, rather than by clinicians alone: 'no decision about me, without me' (DH 2012). This article details a plan of care for an 18 year old male patient with a moderate level of learning disability who was scheduled for a tonsillectomy at a local NHS trust hospital. It focuses on the management of the patient's anxiety, nausea and pain. In accordance with the Health and Care Professions Council's code of confidentiality (HCPC 2014) the location and individual names of places and people concerned will not be disclosed. The patient presented at the pre-assessment appointment as having a learning disability consistent with a diagnosis of being on the autistic spectrum. More specifically, he had cognitive impairment which affected his ability to understand complex information. This, combined with a reduced ability to cope independently, formed the rationale for the attendance of a carer throughout his perioperative journey. According to the National Autistic Society (NAS) there are approximately 700,000 people with autism spectrum disorder (ASD) in the UK ie more than 1 in 100. Autism is a part of daily life for 2.8 million people (NAS nd).
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PMID:Assessing the perioperative communication needs of a patient with learning disabilities: An holistic case study approach. 3006 29

The National Institute for Health Research commissioned research to investigate whether or not NHS psychological treatment for depression could be adapted for autistic people. Psychological treatment for anxiety can be helpful for autistic people if it is adapted to meet their needs, but there has been less research into such treatment for depression. We developed a treatment called guided self-help, which comprised materials for nine individual sessions and a manual to help the therapist guides work alongside autistic people. Two autistic people helped us to improve the session materials we had developed. The guides attended 2 days of training on how to deliver guided self-help. Seventy adults with a diagnosis of autism spectrum disorder and depression agreed to take part in the study. They were randomly allocated to guided self-help or to treatment as usual. Treatment as usual means whatever treatment would usually be available. We asked these adults to complete measures of depression, anxiety and other psychological symptoms, as well as their use of health and social care services, before treatment. We asked them to complete these measures again 10, 16 and 24 weeks later. We also invited them to take part in interviews about their experiences of the study. People who had guided self-help attended the treatment to the end and said that they found it acceptable and helpful. They suggested ways to improve the treatment materials. More people in the guided self-help group than in the treatment-as-usual group completed the 16- and 24-week follow-ups. Just over half of the people in the treatment-as-usual group did not attend the 16- and 24-week follow-ups. This would be a problem in a larger trial because we would not have enough information about the treatment-as-usual group to know if people in this group were doing better or worse than those in the guided self-help group. The findings of this study suggest that a larger trial to find out if guided self-help is effective in treating depression in autism would be helpful.
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PMID:Guided self-help for depression in autistic adults: the ADEPT feasibility RCT. 3185 42


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